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North Carolina Medicaid waiver guide

North Carolina Medicaid Waiver Guide

Learn how North Carolina Medicaid waiver services work, which state agency to start with, how the application process usually begins, and where to search for home and community-based services.

Primary waiver
NC Innovations Waiver
Waiver programs
3
Waiting list
Yes
Self-direction
Available

Last reviewed July 2026. See something out of date? Use the “Suggest an edit” button to let us know.

Overview

What is the North Carolina Medicaid waiver program?

North Carolina's main waiver for people with intellectual and developmental disabilities is NC Innovations, administered by regional Local Management Entity/Managed Care Organizations (LME/MCOs). The waitlist — formerly called the Registry of Unmet Needs, and still sometimes referred to as the RUN — is long. But North Carolina is unusually generous at the front end: anyone can apply regardless of age, income, or insurance, so there is no reason to screen yourself out. And there is a second program, 1915(i), with no waitlist at all, that you can use while you wait without affecting your Innovations position.

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Waiver programs

North Carolina waiver programs

NC Innovations Waiver

People of all ages with an intellectual or developmental disability or related condition, meeting ICF-IID level of care

Ages
All ages
Self-direction
Available
Daily living assistance at home and in the communityJob coaching and employment supportHome and vehicle accessibility modificationsAssistive technologyCrisis interventionCaregiver support & respite
Program details

1915(i) services

People who need support now — no waitlist, and enrolling does not affect your Innovations waitlist position

Ages
All ages
Help with daily activitiesJob coachingCommunity living supports
Program details

TBI Waiver

People with traumatic brain injury, in participating regions

Ages
Adults
Residential supportsRehabilitation servicesCommunity supports
Program details
Eligibility

North Carolina waiver eligibility

The Innovations Waiver serves North Carolinians of all ages with an intellectual or developmental disability or a related condition — including autism, cerebral palsy, Down syndrome, epilepsy, fetal alcohol spectrum disorder, and traumatic brain injury occurring before age 22. You must need substantial support now and going forward, meeting an ICF-IID level of care. There are no income or insurance requirements to apply: you can apply even with private insurance and even without NC Medicaid coverage, because placement on the waitlist happens early in the process.

Intellectual or developmental disability, or a related condition

Qualifying conditions include autism, cerebral palsy, Down syndrome, epilepsy, fetal alcohol spectrum disorder, and traumatic brain injury occurring before age 22.

ICF-IID level of care

You must need substantial support now and in the future — help with daily activities like bathing or dressing, or with community living tasks such as cooking or employment — at a level comparable to intermediate care facility residents.

No income, age, or insurance barrier to applying

Anyone can apply regardless of age, income, or insurance. You can apply with private insurance and without NC Medicaid. Do not disqualify yourself before applying — placement on the waitlist happens early in the process.

Assessment through your LME/MCO

Your LME/MCO conducts eligibility assessments, including the Supports Intensity Scale, and manages the waitlist for your county.

Waitlist & enrollment

North Carolina waitlist & enrollment

Each LME/MCO manages its own waitlist by county, and people are generally served in the order they applied. A limited number of slots are reserved for people with extraordinary circumstances or emergencies. The list was formerly called the Registry of Unmet Needs, so you will still encounter “RUN” in older materials and conversations.

Type
Managed by LME/MCO, generally by application date
Typical timeline
The wait is long, and NCDHHS publishes an Innovations Waitlist Dashboard so you can see how the system is actually moving rather than relying on estimates. Two things are within your control: applying as early as possible, since order follows application date, and telling your LME/MCO whenever your needs increase.
How to check status
Contact the LME/MCO serving your county. The Division of Mental Health, Developmental Disabilities and Substance Use Services Customer Service Team can help you identify it at 1-855-262-1946.

Priority categories

  • Generally served in order of application date, managed county by county
  • A limited number of slots reserved for extraordinary circumstances or emergencies
  • Contact your LME/MCO if your situation has changed since you applied
Application process

How to apply for the NC Innovations Waiver

  1. Find the LME/MCO serving your county

    Use the LME/MCO directory, or call the Division of Mental Health, Developmental Disabilities and Substance Use Services Customer Service Team at 1-855-262-1946.

    Open link
  2. Call and ask to apply — don't pre-screen yourself out

    Ask to apply for the NC Innovations Waiver. Anyone can apply regardless of age, income, or insurance, and the state encourages people to apply even when unsure about eligibility, because getting on the list happens early.

  3. Provide requested documentation

    Depending on your situation the LME/MCO may request medical records and other documentation, and will conduct assessments including the Supports Intensity Scale.

  4. Apply for 1915(i) services while you wait

    This is the most useful step available in North Carolina. 1915(i) offers similar supports — help with daily activities, job coaching — and has no waitlist for enrollment. Applying does not affect your position on the Innovations waitlist.

    Open link
  5. Keep your contact information current and report changes

    LME/MCOs reach people by phone and mail when slots open. Update your details whenever they change, and notify them if your needs increase — that can matter for the reserved emergency slots.

Documents to gather

  • Proof of North Carolina residency
  • Medical records documenting the qualifying diagnosis
  • Documentation that a traumatic brain injury occurred before age 22, if applicable
  • Evaluations supporting the ICF-IID level of care
  • Supports Intensity Scale assessment results
  • School or IEP records, if applicable
  • Guardianship or representative paperwork, if applicable
Before you call

Information to have ready

  • The person's age, diagnosis, and county of residence.
  • Medicaid status or whether you still need to apply.
  • Current supports, urgent needs, and living situation.
  • School, medical, evaluation, or eligibility documents.
  • Questions about waitlists, timelines, and next steps.
Covered services

North Carolina waiver services

Exact covered services depend on the waiver, assessed need, Medicaid rules, funding, and state program requirements. Confirm services, availability, and payment acceptance with the state, support coordinator, and provider.

Home & daily living

Community living and supportRespiteHome and vehicle accessibility modificationsCaregiver support

Employment

Job coachingSupported employmentCommunity networking

Clinical & crisis

Crisis interventionSpecialized consultationBehavioral supports

Technology & access

Assistive technology equipment and suppliesVehicle modifications
Self-direction

Self-directed options in North Carolina

The Innovations Waiver includes self-direction options that let participants and families hire and manage their own staff and direct parts of their budget. Ask your care manager which services can be self-directed and what the employer responsibilities involve.

Innovations self-directionIndividual and Family Directed supports
Costs & financial

What North Carolina waiver services cost

Covered by NC Medicaid

Approved waiver services are paid by NC Medicaid, which also brings health coverage, dental benefits, and medical transportation. Once enrolled, there is generally little or no direct cost for covered services.

You don't need Medicaid to apply

Applying to the Innovations waitlist does not require NC Medicaid or any particular income level — you can apply with private insurance. Medicaid matters when a slot becomes available, not when you get in line.

1915(i) is not a lesser consolation prize

1915(i) covers real supports including help with daily activities and job coaching, with no waitlist. Treat it as something to pursue in parallel rather than as a fallback.

Across the lifespan

Services by age & life stage

  1. Early childhood

    North Carolina's Infant-Toddler Program provides early intervention, separately from the Innovations Waiver. You can apply to the Innovations waitlist at the same time.

  2. Apply as early as you can

    Because the waitlist generally follows application date and there is no income or insurance barrier, applying early is the highest-leverage step available. The state explicitly encourages applying even when unsure.

  3. Before age 22 for TBI

    Traumatic brain injury qualifies for Innovations if it occurred before age 22. Make sure documentation establishing the timing exists.

  4. While waiting

    Use 1915(i), keep your contact information current with your LME/MCO, and report increases in need — reserved slots exist for extraordinary circumstances and emergencies.

Rights & appeals

If services are denied

If eligibility or a waiver service is denied, reduced, or ended, you have the right to appeal and to request a Medicaid fair hearing within the deadline printed on your notice. Because services run through an LME/MCO, there is usually a plan-level appeal too — ask for both in writing. Disability Rights North Carolina is the state's designated protection and advocacy organization.

Key contacts

North Carolina agencies & help

NC Innovations Waiver

Eligibility, services, waitlist, and what happens when you get a slot

Visit site

Innovations Waitlist Dashboard

NCDHHS's published data on how the waitlist is moving

Visit site

North Carolina 211

Local help & referrals — dial 211

Visit site
FAQ

North Carolina waiver questions

We have private insurance and a decent income. Should we still apply?

Yes. Anyone can apply for the Innovations Waiver regardless of age, income, or insurance — you can apply with private coverage and without NC Medicaid. The state explicitly encourages applying even when you are unsure, because getting on the waitlist happens early in the process and the wait is long.

Can I get anything while I wait?

Yes, and this is the most important thing to know. 1915(i) services cover help with daily activities and job coaching, and have no waitlist for enrollment. Applying for them does not affect your position on the Innovations waitlist, so there is no downside.

What is the Registry of Unmet Needs?

It is the old name for the Innovations waitlist, still abbreviated RUN in many conversations and documents. If someone refers to the RUN, they mean the waitlist.

Can anyone skip the waitlist?

A limited number of slots are reserved for people with extraordinary circumstances or emergencies. If your situation has changed since you applied, contact your LME/MCO — they cannot consider a change they do not know about.

How will they reach me when a slot opens?

By phone and mail. That makes keeping your contact information current with your LME/MCO essential — after a long wait, an unreachable phone number or old address is an avoidable way to miss a slot.

Who is eligible for North Carolina Medicaid waiver services?

The Innovations Waiver serves North Carolinians of all ages with an intellectual or developmental disability or a related condition — including autism, cerebral palsy, Down syndrome, epilepsy, fetal alcohol spectrum disorder, and traumatic brain injury occurring before age 22. You must need substantial support now and going forward, meeting an ICF-IID level of care. There are no income or insurance requirements to apply: you can apply even with private insurance and even without NC Medicaid coverage, because placement on the waitlist happens early in the process.

How do I apply for North Carolina Medicaid waiver services?

find the lme/mco serving your county, call and ask to apply — don't pre-screen yourself out, provide requested documentation, apply for 1915(i) services while you wait, then enroll and choose providers. Start with North Carolina Department of Health and Human Services.

What services do North Carolina waivers cover?

Covered services vary by waiver and assessed need, and commonly include in-home supports, respite, supported employment, day services, behavior support, residential supports. Confirm specifics with the state and provider.

Is there a waiting list?

Each LME/MCO manages its own waitlist by county, and people are generally served in the order they applied. A limited number of slots are reserved for people with extraordinary circumstances or emergencies. The list was formerly called the Registry of Unmet Needs, so you will still encounter “RUN” in older materials and conversations.

How much do waiver services cost families?

Approved waiver services are generally covered by Medicaid at little or no direct cost once enrolled, though some enrollees may owe a monthly patient responsibility based on income.

Key terms

Glossary

NC Innovations Waiver
North Carolina's main Medicaid HCBS waiver for people with intellectual and developmental disabilities.
LME/MCO
Local Management Entity/Managed Care Organization — the regional body that manages the waitlist, assesses eligibility, and coordinates services for your county.
Registry of Unmet Needs (RUN)
The former name for the Innovations waitlist, still widely used informally.
1915(i) services
A separate Medicaid authority covering supports like help with daily activities and job coaching, with no waitlist. Enrolling does not affect your Innovations position.
ICF-IID level of care
The standard of support need required for Innovations, comparable to that of intermediate care facility residents.
Supports Intensity Scale
The assessment LME/MCOs use to measure the level of support a person needs.
Tailored Plan
The NC Medicaid managed care plan type serving special populations, including Innovations and TBI waiver enrollees and waitlist members.
Official resources

North Carolina Medicaid waiver resource links

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